Wednesday, July 30, 2008

Next Treatment

We were just prescribed yet another combination of creams and oral medicine to hopefully knock out this rampant psoriasis Josie has going on.

Monday, July 28, 2008

Skin Problems

Josie's breakouts have not gotten better. the majority of her back is covered in psoriasis and what appeared to be ring worm, but that was confirmed negative. it continues to itch like crazy and she's got spots on her arms, legs, and scalp. So the skin doc called today to say she wants to see Josie tomorrow morning to get this figured out. So we'll be heading off to CMH in the morning. i will post you when i get back to work (out home computer is down, permanently and we're awaiting the new one).

please be in prayer that the doctor(s) can figure out what this is and find a treatment that will remove it.

Wednesday, July 16, 2008

Dr. Campbell leaves SA

Hey guys,

Earlier this year i posted about the passing of Dr. Melvin Smith; co-creator of the titanium rib implants that Josie has. It is now official that Dr. Robert Campbell; co-creator or the rib is leaving San Antonio (where this whole titanium rib journey started) to move onto another chapter in his life. i know he will be greatly missed there and wished well for his new endeavor in Philadelphia. Approximately 22 years ago Dr. Campbell was approached by Dr. Smith to come up with a device to help a single child in need. that meeting not only benefited one child but has grown to saving the lives of thousands of children WORLDWIDE who had no hope of surviving. Kid's like Josie, whose parents were told on the day of her birth that she would die in a year. I have pasted his letter to the rib families below. Farewell, Dr. Campbell.... continue your mission of hope.

Dear Titanium Rib Families,

It is with mixed emotions that I must announce that my family and I will be leaving San Antonio in mid-October, 2008. I have accepted a position at the Division of Orthopaedics at the Children’s Hospital of Philadelphia and will begin work at CHOP November 1st. I plan to build a multi-specialty center of excellence in Philadelphia which will specialize in advanced treatment and research of thoracic insufficiency syndrome with the titanium rib remaining the current standard of care.

It was a difficult decision to leave San Antonio after 22 years, but I am confident that the Thoracic Institute will continue in its mission to provide the best care possible with Dr. Walt Simmons as the new executive director with the continuing support of the administrative and physician staff.

Corey and I want to express our deepest gratitude to everyone who has supported us over the years. San Antonio has been a great place. We wish the best for the UT Health Science Center as well as the CHRISTUS Santa Rosa Children’s Hospital. I especially want to thank everyone at the Thoracic Institute, both past and present staff, for the wonderful job they have done. I will miss everyone.

Sincerely yours,

Robert M. Campbell, Jr., MD

Tuesday, July 15, 2008

Cheer Camp

Josie started cheer camp yesterday and was awarded the coveted 'spirit stick'. each day this week the recipient is to decorate part of the stick that night. on the last day (Thursday) one participant will recieve it to keep. We put on the maroon and gold strips on the ends. It was actually one of Josie's pony tail holders that we cut in half and hot-glued on there. Josie is very excited about camp. maybe i'll figure out how to put a video of her on youtube when we record thursday's performance.

Psoriasis issues

We took Josie to her skin doctor at Children's Mercy last week for a check up. It seems as though her psoriasis is getting much worse. The doctor feels part of it may actually be ring worm. they cultured it and will get results in about three weeks, but went ahead and gave us a prescription lotion to treat it. Well, it's not working, and is infact irritating her skin. so we've discontinued it and waiting to hear back for the doc on how to proceed.

Monday, July 07, 2008

Tree Fort

Taylor and i spent the weekend making the fort he's been wanting for several years. man, it was a lot of work and my body is so sore right now.

Friday, July 04, 2008

happy fourth!!!

This delayed shot is taylor running around with a sparkler.

Unfortunately, i wasn't back far enough to catch the full explosion.


Thursday, July 03, 2008

Wild Sleeper

not sure how she stays in the bed. ACTUALLY, once or twice she has fallen out. the last time she didn't even wake up!